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NVforHD Blog

Stories from
the fight.

Education, impact stories, and updates from our community. Every post is written to help HD families, raise awareness, and fund the cure.

✦ Featured
A couple holding each other — the reality of living with HD
Education

What Is Huntington's Disease? The Truth No One Tells You Until It's Too Late

HD combines the cruelty of Parkinson's, ALS, and Alzheimer's into one hereditary disease. If one of your parents has it, flip a coin. That is your chance.

Read Article →March 18, 2026 · 7 min read
All Posts
NVforHD supporters at the 2025 charity golf tournament
Impact

NVforHD 2025: What We Raised, Who We Helped, and What Comes Next

In 2025 we focused on the 90+ Northern Nevada families already living with HD — funding the UC Davis clinic that is their lifeline. Here is the year-in-review and what it means for 2026.

April 5, 2026 · 5 min readRead →
A couple facing the genetic testing decision for Huntington's Disease
Education

Genetic Testing for Huntington's Disease: A Guide for At-Risk Families

If one of your parents has HD, you have a 50% chance of carrying the gene. Testing can tell you definitively. But the decision to test — or not — is one of the most personal choices a person can make. Here is what you need to know.

April 3, 2026 · 7 min readRead →
NVforHD community — Northern Nevada families fighting Huntington's Disease together
Education

Huntington's Disease Support in Nevada: Resources for Reno & Sierra Foothills Families

There is no HD clinic in Nevada. But there is specialist care within reach, a community of families who understand, and an organisation fighting to keep those resources funded. Here is everything Northern Nevada HD families need to know.

April 1, 2026 · 6 min readRead →
Gray's Crossing Golf Club fairway — Sierra Nevada pines, Truckee CA
Event

Gray's Crossing Golf Club, Truckee CA — Why We Play Here

Peter Jacobsen and Jim Hardy designed it. The Sierra Nevada surrounds it at 6,000 feet. And in 2026 it is the backdrop for Northern Nevada's most purposeful charity golf tournament. Here is why Gray's Crossing is worth the drive.

March 27, 2026 · 5 min readRead →
NVforHD sponsors and golfers at the 2024 charity tournament
Sponsors

Sponsoring a Charity Golf Tournament in Nevada: What Your Business Gets

A $3,500 title sponsorship at NVforHD puts your brand in front of 100+ Reno/Truckee professionals, associates you with a cause people genuinely care about, and funds HD specialist care for Northern Nevada families. Here is exactly what you get.

March 26, 2026 · 5 min readRead →
NVforHD supporters at the charity golf tournament — every one of them making a direct impact
Impact

Where Does NVforHD Money Go? A Full Transparency Report

Zero overhead. One cause per year. Every dollar tracked. Here is exactly what NVforHD has raised, where it went, who it helped, and what your donation or tournament entry pays for in 2026.

March 25, 2026 · 5 min readRead →
Baby hands — the next generation can be free of Huntington's Disease
Education

Is Huntington's Disease Hereditary? What Every Parent Needs to Know

If you have HD, your children have a 50% chance of inheriting it. But that coin flip can be eliminated — before the next generation is born. Here is what every HD family needs to understand about genetics, testing, and options.

March 24, 2026 · 7 min readRead →
A couple facing Huntington's Disease — understanding the stages ahead
Education

Huntington's Disease Symptoms & Stages: What Families Need to Know

HD progresses through three stages — each stripping away something else. Knowing what is coming does not make it easier. But it helps families prepare, plan, and fight back with the right support.

March 22, 2026 · 8 min readRead →
Gray's Crossing Golf Club, Truckee CA — venue for the 2026 NVforHD charity tournament
Event

May 29, 2026: Why Gray's Crossing Is Where You Want to Be This Memorial Weekend

Peter Jacobsen designed it. The Sierra Nevada surrounds it. And every dollar you spend there goes to families fighting Huntington's Disease. Here's everything you need to know.

March 20, 2026 · 5 min readRead →
NVforHD supporters at Gray's Crossing golf tournament
Education

Huntington's Disease Care in Northern Nevada: Why UC Davis Matters

There is no HD specialty clinic in Nevada. For over 90 families in Reno, Sparks, and the Sierra Foothills, UC Davis in Sacramento is the closest lifeline they have.

March 10, 2026 · 5 min readRead →
Thank-you letter from Rylee and Brandon Puccini after IVF funded by NVforHD
Impact

How IVF Can Break the Huntington's Disease Cycle — and How NVforHD Made It Happen

Brandon and Rylee Puccini are expecting a healthy baby, HD-free. It started with a golf tournament in Truckee and a grant from HelpCureHD. Here is how preimplantation genetic testing is changing the story for HD families.

February 28, 2026 · 7 min readRead →
NVforHD supporters gathered at the charity golf tournament
Get Involved

5 Ways to Help the Fight Against Huntington's Disease in Nevada

You do not have to be a golfer or a millionaire to make a real difference. Here are five concrete ways to support HD families in Northern Nevada right now.

February 15, 2026 · 4 min readRead →
May 29, 2026

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