Nevada for Huntington's Disease

Terminal.
Hereditary.
No cure.

HD destroys nerve cells — likened to Parkinson's, ALS, and Alzheimer's at the same time. Every child of an HD parent has a 50% chance of inheriting it.

1 in 10Kpeople have HD globally

50%hereditary rate

0known cures

The Disease

A fight that spans
generations.

HD is a hereditary brain disorder with no known cure — terminal. It causes deterioration of nerve cells likened to having Parkinson's, ALS, and Alzheimer's simultaneously.

Symptoms typically emerge between ages 30–50 — after most people have already had children who may carry the same gene. Every child of an HD parent faces a 50% chance of inheriting it.

This disease struck Sean Schaeffer's family when his wife Christine was diagnosed. NVforHD exists because of that diagnosis — and because of the hundreds of other families in Northern Nevada living the same reality.

No known cure. HD is always fatal. Researchers are making progress but there is no approved treatment that slows or stops the disease.

50% hereditary rate. IVF with preimplantation genetic testing permanently breaks the cycle. One procedure — no HD for future generations.

UC Davis HD Center of Excellence — the only HD specialty clinic serving 90+ Northern Nevada families. 2 neurologists, 2 psychiatrists, 1 genetic counselor, 1 social worker, 2 PTs. Runs on private donation.

1 in 10,000 people globally have HD. Approximately 30,000 Americans are symptomatic. Another 200,000 are at risk of inheriting it.

“Every time we look at our future child it will be a reminder of the kindness you showed us.”— Rylee Puccini, 2026

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Terminal.Hereditary.No cure.

A fight that spansgenerations.

Terminal.
Hereditary.
No cure.

A fight that spans
generations.